Georgia Lily

Georgia Lily
My Love Bug

Wednesday, May 30, 2012

Saddest Sad Face

Just a quick update, Georgia did really well in therapy today, she is starting to warm up to the therapists now, thank you, Jesus. I cannot tell you how good that is because it makes me feel like not such a bad guy anymore. During our afternoon speech session Georgia was looking in the mirror at herself and she kissed her reflection, we all clapped and cheered her on, this proved to be too much for her and she made the saddest sad face EVER! It was cute though, she pouted her bottom lip and everything, I can not tell you the last time I saw her make this face. Even though it was sad it makes me happy to see my little Love Bug showing more emotion. Then in the garden after therapy ended for the day I was praying and she looked at me and put her arm up and I said what is wrong and you know what she did?!!! She hugged me, really hugged me. That has never happened, usually I am the one who wraps her arms around my neck, God gave me a special gift through Georgia today. After supper tonight we took some books out to the garden, we read and did some stretching, we worked with more kneeling and reaching across the right side of her body. She even thought it was a game when I took her bink away for her to grab. I'm so proud of her. We got a discharge date, June 15, nothing is set in stone of course but it would be so fabulous to go home on this day. I'm scared but excited at the same time to see how much she will progress in her own environment. We gave her some melatonin tonight to help her rest and she is resting peacefully now, if only this place were a lot more quiet maybe I could rest. I have a prayer request, tonight a friend is finishing the second part of her son's hemispherectomy. I know they have a long road ahead of them, her baby, Sutton, is only 7 months old so I'm not sure if he will have to go to inpatient rehab or not but please pray for their family.

Tuesday, May 29, 2012

Beauty from Pain

   Hello, I know it has been a few days, not much to update and just soaking everything around me in. I do not feel as down as I did but I still feel blue. A family friend called me Monday night and told me that when Georgia starts to feel restless to read Psalms to her, so for the last few nights I have done that and it has helped me. Not suprising though, that is what the Word is for, to bring us hope in time of distress. Sometimes I feel like such a fraud, I would like to pretend that I have it all together and I am sailing through this process of rehab but truthfully I am not. I feel restless and antsy, I feel as though we have reached our potential and sometimes I think that I have asked God for too much and I just need to accept things as they are. I feel very far from God, I wish that I could go back to that mindset in which I just prayed that God would take the seizures and we could handle everything else but then I look around and I want more. I want my Georgia, the child that I gave birth to, that was healthy and happy and far exceeding her peers. I have asked if that was a predictor of how things will be once the seizures were stopped and I have not been told a straight answer, the doctor did tell us that our IQs and our involvement with our child did have a huge part to play in the recovery of Georgia...while I may not have a huge IQ I am a very hands-on Mommy. I still do not know the "plan" and how I wish I did. I am continuing to pray for guidance and patience and not to be angry.

   In the midst of all this, I see Georgia's scar and I cannot help but think it is one of the most beautiful things, I see God's thumb print. When I first saw it, that first night after surgery, it terrified and scared me, I almost fainted. However, because of that scar I can see hope, when there was no hope for my daughter, I see this visible sign that there is hope for her, for her to have a normal life, normal friends, normal fears and normal moments in time that she would not trade for anything not to have that scar.

   It seems crazy to think that just a few weeks before we saw Dr. Lee we were told there was no hope for Georgia, her seizures had no beginning and no ending and she would seize until she eventually died. Fast forward two months later and we are given life, when we did not know how we were going to live our lives out with Georgia seizing every hour of every waking day, we are almost three weeks without one seizure. I am still holding my breath and everyday her pediatrician here kindly asks if we have seen any seizures and I tell her no, I am still waiting. I hope and pray that I am waiting in vain. Every little thing she does, I am scared. I hope this will pass as we get further and further out from  surgery. From death to life, God is so good. While I am here feeling sorry for myself, God is on His throne and He wants to hear from me, He wants me to cry out to Him, He wants to comfort me. So why do I feel so estranged from my Father? "Do not grieve, because the joy of the Lord is your stronghold." Nehemiah 8:10 "Wait for the Lord, be strong and courageous. Wait for the Lord." Psalms 27:14 In times like this I must remember to praise Our Father who not only gives but also takes away, "I will thank Yahweh with all my heart; I will declare all Your wonderful works. I will rejoice and boast about you; I will sing about Your name, Most High." Psalms 9:1-2 Please pray for me and Georgia of course. God will get all the glory no matter what.

   I almost forgot, Georgia is sitting up completely unassisted, she is looking more to the right now, whereas she had all but ignored it before, she is finger feeding, she has grown quite attached to her blanket (read she takes it everywhere with her), she props herself up on her elbow from her stomach  she is able to kneel on her knees, she is rolling completely over in the bed and I am not sure if I mentioned this before but she is able to sit up in bed from laying down. We are looking for more purposeful movement from that right side, it's taking a little longer than I would like but I'm still certain it will happen. Hopefully, tomorrow we will be given an estimation when we will be discharged.

This is a great song, Stay With Me by Barlow Girls. My theme song for now.

Hope is, getting through this night
And life is not dying in this fight
I'm begging you to deliver me ooh ooh ooh
Confused why you won't take this pain from me

My steps never felt so hard
The end never look so far but
If you won't take me out
Then please take me through this

Stay with me so I won't leave
And make me see that this is not forever
'Cause all I need is your love pulling me

What is the reason for this night
Is hope found in moments with no light
Does strength grow in our greatest fears
And God I pray something good will
come from this pain

My steps never felt so hard
The end never look so far but
If you won't take me out
Then please take me through this

Stay with me so I won't leave
And make me see that this is not forever
'Cause all I need is your love pulling me

With you here I know
I don't go alone
I am yours and so
Through the fire I'll go

My steps never felt so hard
The end never look so far but
If you won't take me out
Then please take me through this

Stay with me so I won't leave
And make me see that this is not forever
'Cause all I need is your love pulling me

Stay with me so I won't leave
And make me see that this is not forever
'Cause all I need is your love pulling me

Saturday, May 26, 2012

Tightly Wound

I approach this post a little differently tonight, I must admit I have been very depressed while here at Brooks. I know I had high expectations but I just thought that once Georgia's seizures stopped we would make leaps and bounds of progress and she was but I feel we have platued for the moment. Does not help that we do not get much therapy on the weekends. I thought Georgia would be so happy not to be seizing. I cannot really feel my child out, at moments she is so happy but then it fades just as quickly as it came. I do not understand. Everyone keeps reminding me that she just had major surgery and she has to adjust, adjust to her new body with the weakness, adjust to life without all the white noise in her head, adjust to not being home for the time. It hurts me to see her getting to agitated when her brother comes around. How is it going to be when we get home? Is she going to have a hard time getting used to home? What happens when we get home? Am I going to have to hover her and help her walk? I just wish I knew. Is it wrong of me to ask God that He completely restore Georgia when He has already done so much by healing her of the seizures? I wish I knew the "plan". There has to be more to this. I got a little reprieve today, I got to celebrate Conerly's first birthday with him since I was unable to see him on his actual birthday. We found a cute 50's diner, took him to o2b kids, which he loved and I found out he is scared of heights (surprising right?), then we took him to BABW to make a monkey. He had such a great day, we finished off our day with birthday cake and a nice bath. I do not know what I would do without his smiling face and cheerful spirit. God gave me him for a reason and I am so grateful. I do feel better and I can hope that when I feel down his week I can look to the future and see that this will not be forever. If God is not going to take me out then He is going to take me through.

Thursday, May 24, 2012

Rehab Take 2

Last night was rough for Georgia. She did not sleep that well and was up every hour or so. I think she is scared of the dark now that she is more aware of things. I would reassure her and then she would go back to sleep. Today Georgia was evaluated by all the therapists and they will write up their plans as well as the goals I would like to meet before we go home. We start "boot camp" which is several therapy sessions throughout the day. Hoping that tomorrow will be a better day. Today was really hard on me. When Georgia is down I am down. And boy was she down, she was fussy all day. I think she might be experiencing stranger anxiety and with all the new faces she is scared. I think to myself is the three years of constant seizures has damaged her brain, and while I once had a healthy happy child has been replaced with a shell. I see these happy children full of life and so excited for new things and I do not yet see these things in Georgia. Please pray for me. On a better note, Georgia did laugh when we were snuggling at bedtime and it lift my spirits. She also was able to pull herself from laying down to sitting up with no assistance. She also moved her entire leg when I tickled her under the knee. She also loves going outside and sitting by the lake.

Wednesday, May 23, 2012

Brooks Rehab

Nothing new to update, we were transferred to rehab today and are settling in to our new home for the next few weeks. Hoping to start making lots of progress and get discharged to home. Please pray for me, Conerly's birthday is tomorrow and I know he will be here sometime tomorrow night but I am sad I won't get to spend the day with him.

Tuesday, May 22, 2012

Completely Renewed

   Georgia slept all night, we woke up to a pleasant suprise the swelling was about 75% decreased and this afternoon it had decreased to about 95%. She looks beautiful, she acts like herself and Mommy feels completely confident in our decision to have the hemispherectomy. Yesterday was a hard day for me, I did not want Georgia to have a shunt put in but at the end of the day I had to pray about it and lay it down at the alter and trust that My Father would take care of it. He did! Why did I ever doubt? He tells us to cast all our cares upon Him, His grace is sufficient. Nothing is too big or small for Him.

   We are getting discharged tomorrow, we got the a-ok from Dr. Lee. He came into our room and he was so happy to see Georgia and he said, "Well she did not want a shunt did she?" Then he stuck his head out the door and happily called his PA and said, "You have to come and see this!" He is so pleased with all her progress. He will see us two weeks after we leave Brooks and then three months after we go home and yearly after that. At her three month visit he will adjust her dosage of Lamictal.

   I sit in amazement at how far we have come in just 12 short days, Georgia is not seizing, she is more interactive, she makes great eye contact, usage in her right side is coming back, and I feel in the first time in a long time that I can live, actually live, not worry about what tomorrow will bring because I know nothing can be as bad as living with a child that constantly seizes. Life is going to be so sweet. I also know that I am strong, I can handle things. I can praise God finally for the seizures because I can see what He was doing. He needed to put me through the fire so that He could refine gold.

Monday, May 21, 2012

Minor Setback

   We have been doing so good, Satan has to gain a little control over the situation. Georgia has some swelling that is concerning to the doctors and myself as well. She did not sleep well last night and was up at 5:30 this morning. She has been a little more fussy today and not eating well. She cried when I would leave her, this is so amazing to me, I finally feel that Georgia knows who I am and for that I am so happy. So with that being said she wanted me to hold her all day; she took a nap on me and when she woke up the swelling was significantly worse, I called the nurse in and she called Amy, we started Georgia on a medicine that should help decrease fluid in her IV and tomorrow Georgia will go down stairs for a CT scan. We will then decide if we should stay on the medicine, replace the drain, or if we should place a shunt in her brain. The best option would of course be the medicine. I keep praying and I hear in my head, "Trust in the Lord, Trust in the Lord." I am going to keep trusting no matter what. God has this. Tomorrow is a new day and we will worry about what tomorrow brings. I cannot do anything about it anyway, it's out of my hands.

Sunday, May 20, 2012

Drainage Out!

   Georgia never ceases to amaze me, this morning Amy came by and said we could remove her drainage. She told me we could medicate her or we did not have to, the choice was mine. I know that Georgia is such a trooper and I knew that she had family coming by so I did not want her to be dopey so I said no medicine, Georgia fussed a little when we laid her down but when the drain was pulled she did nothing, she flinched slightly when the staples were put in then she was good. We got to wash her hair bedside. Overall, one of the best days so far, hopefully tomorrow we will get discharged to Brooks. Keeping my fingers crossed. Georgia is able to sit up on her own for a few minutes before she gets tired, she is also able to pull herself into sitting position with little to no help. She is able to put more weight on her leg. She is doing so well I am so proud of her, my little angel.

  Unable to understand why Georgia's surgery got pushed back God keeps showing me.  I was able to talk to another family, here from Panama, about the effects of what will happen if seizures are left untreated. This precious little girl is 6 months old, she started seizing on April 26 and her surgery is set for Thursday May 24. That is simply amazing! God is so good. Not even a month will go by before something is done. I sit in amazement at my Father's feet. I feel so blessed to be able to help other people. Just as the Bible says, "Love one another as I have loved you." John 15:12 And in Matthew "In the same way, let your light shine before others, so that they may see your good works and give glory to your Father who is in Heaven." Matthew 5:16

   I have met so many people here, angels in disguise, that I may have never have met had it not been for Georgia and this trial, as I have said before I would not have chosen this for my child but I am so glad to be on this journey with her. I love Georgia, my little Love Bug! I will always try and help anyone who will listen.

Saturday, May 19, 2012

Rock Star!

   This post will not be long just wanted to let everyone know Georgia is doing so well, we were able to stand up quite a while this morning, she giggled, smiled, sat up, and is just overall awesome! I cannot believe that we are 9 days post op and no seizures, not even a glimpse of one. So glad that is a thing of the past now. I cannot believe all that I was missing out on, Georgia responding to her name, Georgia looking me in the eye, she actually giggled at a video of herself today. I have so much to be thankful for. We have completely clamped off her drain so her head is doing all the work of absorbing the fluid and just for kicks our night nurse checked her ICP (Intercranal Pressure) and it is a whopping....1! The range is from 0 to 10 and Georgia is one, that means there is like no pressure in her head. My little trooper, I praise God for all the He has done and all that He will do. What amazing God we serve.

   As for me, I feel so at peace, last night Sean and I were playing with one another and I thought to myself: when was the last time I felt so free, when was the last time I felt so joyful and hopeful and not weighted down by the stress of Georgia's illness? I can honestly tell you, it was 3.5 years ago, the day before Georgia's first seizure. Still cannot believe that we are here, Georgie not seizing, starting to learn again, so much better than we were almost two weeks ago and still better tomorrow. Seizures seem like a life time ago, or like someone else was living that life. All I can do is say, "Thank you Jesus!" My heart sings to my precious Father for delivering us and setting us upon a rock. My faith was not where it should be and the Lord has strengthened my faith ten-fold, I will never be the person that I was before this illness chose my child but I do know that I am stronger, more patient, more compassionate, humble but you know what? I am all around a better person for this, God has shown me how to praise Him through the storm. How to thank Him for the trials. Georgia, as I said before, not because you needed us but because I needed you! Praise to God.

 Lego Man!
 My two besties!
 Looks like Georgia is looking right at Conerly and vise versa, they love each other!
 My stinker winker bear!
 So beautiful, I can see some prissyness starting to re-emerge
 Crooked lil grin, my right side will return
 Aunt Sabrina, Uncle James, and Cousin Connor
So proud of my hero!

Friday, May 18, 2012

So Happy I Could Burst

   My little hero had a fabulous day, actually better than words can describe. She slept all night last night and woke up in a great mood, she did so well with PT today, stood up with assistance for about a minute or so, ate a good amount of her breakfast, and drank a lot. She looked more like herself and has completely revived my spirits. She sat up by the window and was looking outside, she cooed a lot today, she answered to her name, made great eye contact, and lastly she laughed! Belly laughed! Mommy is on cloud nine to say the least, I can't believe I have been living without this for the last week. We have gained almost everything back and then some, for Georgia to answer to her name is awesome. She is also tracking with her eyes and when she drops something she looks for it. Simply amazing, all I can say is Praise God! I cannot stop thanking Jesus because He has given Georgia back to us and He is going to continue to work through her until she is completely restored. "For I know the plans I have for you, declares the Lord, "Plans to prosper you, to give you a future and a hope," Jeremiah 29:11

Here it is folks, Georigia is laughing!

Thursday, May 17, 2012

Good Day

   Georgia was in fairly good spirits considering that she had not slept in almost 24 hours. I was a mean mommy and I made her work through her irritablity and frustrations today. I hate being making her work when she is having a bad day but I know she will thank me later in life for this, for pushing her when she did not have it in herself. I am confused about what her right side feels like; the therapists said that we have to remind her body that it is still there because of the surgery her brain does not recognize that the right side but I am confused about what it will feel like for her when all movement is restored and she is able to purposefully use that side. I was talking to Mrs. Helen from church and she said after her stroke her side was paralyzed but she started feeling a burning and tingly sensation on that side before usage returned so I am not sure if Georgia feels this. She is moving her head all over now and she is able to hold herself in a sitting position if you give her a little support; Sean said she wanted to pull herself up this afternoon and she is rolling in the bed like she should. I am a little worried about the restlessness that she has been displaying lately, I am hoping that when we are able to move her around a little more then she will return to her self. Sean and I were talking about what it is going to be like for her when we take her outside for the first time when we leave here. Will she like the feeling of grass on her feet? Will she still like to swing? Will she like the wind on her face? Will it be like going outside for the very first time? All things I cannot wait to find out.

   Like I said doing well though, she smiled a little more and she cooed some, when we stood her up this morning with PT she wanted to take a step, very promising. We love all the therapists that we have met here, they are fabulous and we love the hospital, most caretakers that we have met have faith, this is so wonderful, I know God had His hand in this. Georgia is also doing well with the drainage being adjusted, I think that she is in a little more pain because of the the adjustment and because some of the swelling and bruising is gravitating down her face but other than that good. Tomorrow night will be her last dose of ONFI. Yay! One seizure medication down, one more to go. One week seizure free! Almost too good to be true but not. because God has taken care of her.  Georgia is sleeping peacefully now, cannot wait to see what tomorrow brings. I am hoping for movement to return to that right side. Only God knows but I trust Him, if anyone knows what they are doing it's Him!

   Mommy is feeling better despite being tired, Daddy brought Conerly today and my little guy was so happy to see me and his sister. He brought her a new teddy from BABW and Georgia is sleeping with it tonight. I love seeing her interact with stuffed animals. this is all so new to us. I am hoping that we will hear tomorrow what the next part of the plan is to get Georgia out of here and into Brooks.

"I waited patiently for the Lord; He turned to me and heard my cry. He lifted me out of the slimy pit, out of the mud and mire;  He set my feet on a rock and gve me a firm place to stand. He put a new song in my mouth, a hymn of praise to our God. Many will seee and fear the Lord and put their trust in Him. Psalm 40:1-3
So long I have waited for my season of sorrow to change and it finally is. I was not always patient but God has given me the strength that I needed to survive, He does not ask much just that you have faith and believe that He will deliver you. I have been delivered, Praise be to God!

Wednesday, May 16, 2012

Rough Day

   Georgia had a rough day, she did not eat much and was just fussy for most of the day. She just seemed so uncomfortable and I do not know how to comfort her, this weighs so heavily on my heart; I wish that I could take her place. I know this surgery was not going to be easy and I know that the road to recovery was going to be rough but I did not realize how emotoinally draining that it could be. I have to keep looking at the bigger picture which is Georgia seizure free, walking, playing, talking, doing all the things that a typical child can do. I think that I am sad about things because I want to be home, my sister told me that Conerly walked several steps today. This breaks my heart, I want to be home watching him, I want Georgia to be happy again. So hard today.

   For having a rough day Georgia is still making progress, she has almost full control of her head, able to turn it both ways, up and down. She watched cartoons this morning, she never really paid the T.V any mind much before and she also loves her stuffed puppy. This is really nice to see and gives me hope that all will work out with time because she has never played with her stuffed animals before and for her to be comforted by this puppy is amazing, I think that he keeps her calm (Thank you Mrs. Laboy, Lisely, Tanis and Pro!!!!) Her eyes are completely open too! And, I had to come back to the house tonight to shower and my mom told me that Georgia was cooing, we have not heard her make any noise except for crying since the surgery, Praise God!  Dr. Lee stopped by today, we are going to be able to stop one of her seizure medications, ONFI, so Georgia will only be on one seizure medication when we go home, so around the 6th month seizure free no meds! Dr. Lee is also saying that Georgia will talk to us, of course he cannot guarentee this, but he is convinced that she will talk to us, he is so pleased with all the progress that she has made this far.

Side note: I told Dr. Lee about my blog and Billie his nurse is going to be listing it on the main website, I am so happy about this, I told them I want to be able to help others in any way that I possibly can, I had to walk this path so that I could help others. God will get all the glory. With that being said, please feel free to refer anyone to my blog even if it not the same situation if I can inspire someone, anyone this is what matters to me.

I leave you with this verse, "I can do all things through Christ who strenthens me." Phillipians 4:13

Tuesday, May 15, 2012

A Smile At Last

Georgia has a rough night, she did not fall asleep until around 5ish. Mommy and baby were exhausted; doctors think that she has her night and day confused because she has been sleeping so much during the day as well as night. So today we kept her up as much as we could, it was a very productive day. She sat up with PT and is gaining more control of her head; we were also able to stand up her for about 30 seconds. She is doing so well. She moved her right arm and actually rested her elbow on the bed with her hand in the air for a good minute or so, she was angry with us to it must have given her the motivation to hold her arm up. She also stretched out her leg. Then around the end of the day when it was just the two of us, I was talking to her and rubbing her arm and she SMILED at me. It was the most amazing, beautiful sight I have ever seen. It was almost as good as the first time I ever saw her smile. She was fussier today; I think her stomach hurts because she hasn't been "regular" since the surgery, though we did make a little progress in that area today. We were able to wash her hair somewhat today and she is draining less fluid, all good things, however, Amy said that we will not even be able to think about adjusting the drain until the fluid becomes more clear and we are looking at like another week in the PICU, ugh, but more time for her to recover and we love our nurses! I cannot stop praising God for all the work that He is doing in Georgia, so much progress in such a little time. We know it is going to be so wonderful and cannot wait to have our little girl at home doing all the things that she should be doing. "The Lord is my strength and my song, and He has become my salvation; this is my God, and I will praise Him; my father's God, and I will extol Him." Exodus 15:2 Blessings!

Monday, May 14, 2012


Thought I would change things up a bit tonight and talk about the star to the show, Georgia Lily. Well, my little trooper has been so patient and cooperative after we put her through the ringer. She has hardly cried since Friday, post-op day one. She still has not smiled but I know that this will all return as soon as she has the energy to enjoy things again, I think she is still a little fatigued. Today we had to put a feeding tube down her nose, she was none to pleased. Georgia had other plans though, the tube stayed in for about two hours before she removed it, she has been eating really well though so maybe we won't have to do this to her again, we bought ourselves three days to do a calorie count. Yay! The doctors are concerned about maybe needing to put a shunt in her brain to drain off the excess fluid, I am not proclaiming this, I'm holding on to our Lord and He is going to work all this out. They are worried because her heartrate dropped in the night last night but I think that she was just really comfy and maybe a little slouched in her sleep. I am not concerned. I have God on my side. As the pastor was telling me today, Satan would like to regain some control of the situation and put doubt in our minds but I am not going to let myself fall into that negative mindset. Ronald McDonald stopped by to see Georgia, nice guy! We saw Dr. Lee today as well as Amy, the PA, that works with Dr. Baumgartner. They are very pleased with all the progress that Georgia is making. We are too! I cannot wait to hold Georgia without all the wires and I want her to hold her arms out for me and I want her to smile. Most of all, I want Georgia to be happy! I know we are starting this leg of the journey and it may be a long road but we are going to walk it together and I am going to be her strength when she does not have it in her. Many tea parties, dressing up, and horse playing in our future! On a different note, I got the pleasure of talking to another family, they are in the same position I was in 3 years ago, seems crazy that it has been this long but their baby is 6 months old and precious, as precious a baby I have ever seen. It is like a dream that Georgia was once that small when all this started. Oh, how I wish that I could I would seen Dr. Lee at that time. How precious time is when dealing with this disorder. But nevertheless, we are here and God can move mountains and I had to walk that path because God has to mold me and make me and get me to the point of fully trusting Him. Anyway, I got to answer questions and tell of my experience, this was prophesized to me several months ago, that I would get to be help people. I am so happy to help others and I am glad God has put me in this situation. I have known for a long time that this more about me and less about Georgia, God knew this long ago and He had to build my faith. As I have said before, it's not faith until it's all you are standing on.
Chowing down on some pancakes
Amy the PA who fabulously stitched me up
Working with physical therapy
Sitting up!
My team, the guy in the white coat...Dr. Lee, we love you and thank you for caring for our Love Bug
It's Ronald McDonald!
Playing with one of my favorite toys, my phone, yes Mommy and Daddy have replaced it three times.
This picture is from Saturday but I love it so much so I had to post it, my niece Kaylin loving on Georgia. More like sissys instead of cousins

Sunday, May 13, 2012

Mother's Day Message

Happy Mother's Day to the girl who made me a Mother, Georgia, this is the second Mother's Day without seizures, the first Mother's Day I had no idea what awaited us down the road. As I reflect on today, I am amazed at how far we have come. I love you so much and you have made me into a far better person than I could have ever had been, had it not been for you. You are so inspiring to me and I hope one day I can be as brave and courageous as you are my sweet baby. You are incredible and I love every minute that I can be your Mother. You have no idea how many people you have touched simply by being you and what a priviledge it is for me to be apart of that. The Lord has blessed me beyond compare with you and your brother. We have a long road ahead of us but with God and our faith, this will be a breeze compared to the last three years. We have endless happiness ahead of us and I cannot wait to see what next Mother's Day brings us. I cannot wait to get to know you all over again minus seizures. It is my prayer that you will remember nothing of this except the good moments that you were not seizing. I hope you remember laughing and giggling and making messes and twirling and running in the grass and all that has happened that brought a smile to your face and mine. I love you baby and I am so proud of you, all that you do and all that you will do. Happy Mother's Day to my child, that gave me the beautiful title of Mother. xoxoxo


I have taken pictures of our entire stay while we have been here, please keep in my mind I would eventually like to turn this blog into a book for Georgia so I am not trying to be morbid by taking pictures, I want to show Georgia just how far she has come. I started taking pictures the night before and are up to date.
Cuddling with Daddy the night before D-Day
Family picture before we head into the OR
Love my Nana and Pop-Pop
Aunt Laura and Kaylin
Mommy and Me
My Entourage
Let the waiting begin
Cousin K.K
My Pastor and Mrs. Siri
Love my Daddy
And my Mommy
Right after surgery, just moved to PICU
So glad to see Georgia again, long 10 hours in the OR
Before the swelling begins
Day 2 (first 24 hours without seizures!)
Redecorated my room
We covered every surface that we could
The nurses supplied the tape!
Everyone compliments the decorations, brings such cheer to a dreadful place...
Day 3, the bandage is off
Mommy gets to hold me for the first time in 3 days
The nurse who helped to move me into my Mommy's arms
Our favorite day nurse, she takes such good care of me
Mommy's besties! God has blessed me with the most precious, loving, sweet, brave and beautiful babies EVER!
Posing with Nana
Posing with Mamaire
Aunt Laura and Kay Kay
Rockin the hair bow, my hair cannot be washed until we get the a-ok from the doc...
Settling in for the night
Thanks Aunt Laura for the new bear
Mother's Day
Daddy time!
That's right ladies and gentlmen, I am standing...72 short hours post BRAIN surgery!
My favorite night nurse!
Settling in for night number 4