It has been a while since I last posted, I promise to stay more on top of it. It has been crazy around here, it seems at the end of the day all I want to do is crawl in bed and sleep. In order to keep a positive mindset and to note all the progress Georgia makes in the coming month, for the next thirty days I will find something positive about the day or something new that Georgia does.
Last week we had a follow up appointment with Dr. Lee. To say that he was pleased would be an understatement, I left out of that office on cloud 9. First we discussed that Georgia has not had one seizure since May 10, then we discussed her meds (Lamictal) which he lowered to 25mg twice daily from 40mg twice daily. He said only 3 more months and she will be completely taken off her meds, can you believe that? Sometimes I cannot, we have been steadily giving her meds for 4 years....He is a little concerned about her weight (which accompanies her illness) so he decided to put her on an antihistamine which should make her ravenous (his words not mine). We started that and just as he predicted, she eats a lot! We also discussed the fact that she is more social and all around "with it". I told him that she gives kisses again and shortly after I told him, she leaned in and kissed my cheek. Nothing more beautiful than feeling and seeing the love you have for a child returned. At long last. Dr. Lee wanted her to give him a kiss, she didn't but it was really nice that he wanted to let her. One thing that was concerning me was put to rest, Georgia has started doing this head shaking thing, almost looks like she is shaking her head no, but she does it randomly. I was explaining it to them and they were like I do not know what that could mean but if Georgia had picked up some autistic behaviors not to worry because they would fade in time. Whew! Huge sigh of relief! He also told me not to get hasty with a diagnosis. To that I replied, you do not have to worry about that, I am in no hurry. Then after he told me that, Georgia shook her head like she was doing and all at once, they told me that is nothing to be concerned with.
Last time I posted Georgia was crying A LOT! The day after I posted that I was going to change my attitude towards things and choose to be happy, she stopped crying. I mean completely. In fact, she hardly cries at all now unless she is frustrated. Many wonderful things have happened since then, she is walking very well. It is not necessarily pretty yet but everyday she is getting stronger and stronger. That is all I can ask for. She is started to walk independently. Also, she has started pulling herself into standing position. It is like she is a baby again and has to start from scratch. Yesterday it looked like she was ready to take off and run. She answers to her name most of the time and she in actively interacting with others. I look at the beautiful relationship between her and her Daddy. It is like they are on the same wavelength or something. He can make her laugh with just a silly look or a silly phrase. Sometimes I feel envious because he has that with her but I know in my heart we have a different but just as beautiful relationship. The other day she wanted to walk, I wanted her to show me where she wanted to go and she led me to her high chair and started laughing, I said do you want a snack? It was awesome! Her therapists are very pleased with all her progress and said she is changing daily. They have said she will not be the same child in 6 months.
I owe everything to my Lord and Savior who has seen us through some of the darkest nights and days. He has always been with us, He has given us the strength when we could endure no more. He opened doors when we thought there was no hope. All I can say is thank you Lord. What a miracle I have witnessed, I know there are days ahead when I might feel discouraged but they are nothing compared to the anguish I felt when Georgia was seizing day in and day out without resolve.
"Keep on dreaming, even if it breaks your heart."
Isaiah 41:10 fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.