Georgia Lily

Georgia Lily
My Love Bug

Monday, March 19, 2012

A Beautifully Orchestrated Plan

   Has there ever been any doubt that we serve a HUGE God? After we left the hospital, we felt a little bit deflated but being the parents that we are, persistant and unwavering when it comes to our Love Bug, we are going to another new doctor this time in Orlando. Now before you ask Why? You have been to several doctors already and they all have said the same thing, nothing to be done. Well, just before we went to Jacksonville, one of the pediatricians that Sean used to work for, called him and told him about this new state of the art program down in Orlando. Sean started reading about the doctor there and the program and he was amazed. I have to say that I did not want to get my hopes up at all, especially after all that we have been through, but after we left the hospial I started doing my own reading. Pretty spectatular! Now, I am not for putting all my eggs into one basket and that is what I was telling Sean, but then out of the blue, my mom came across a lady who is currently at this hospital with her daughter.

   What are the odds? Pretty slim to none...this lady, Anneliese has a seven year old girl who has had seizures since she was three months old and she has several types of seizures and she has seizures from all over her brain, just like Georgia.  Even more crazy is we have seen several of the same doctors including the last one, where he told her just like us, there was nothing to be done and just love on her because she is never going to recover. He told her this when her daughter was one, can you believe that? Holding your precious one-year-old and told, "nope, we cannot do anything, just love as best you can." Only God knows, and I pray that this "doctor" is soon brought to his knees or he gets put out of business of "treating" patients. To put things into perspective, Anneliese has been to three countries and has had her daughter on 11 medicines. This little girl has learned to walk 4 times in her life. Can you imagine? Her little girl has progressed then regressed over and over again. I can certainly imagine, I have been living this for the last three years. Not the severity of this but I can totally relate. It also makes me realize how fortunate that I am for all that Georgia does. Georgia has never had it as bad as this other little girl.

   Now, we have not been scheduled for an appointment yet but we have talked to them and as soon as they receive Georgia's records they are going to schedule us. When I had them on the phone last week, I asked them if there was a long waiting period and to my amazement there is not, the receptionist told me that they would have us in the same week or the week after. Apparently, these doctors only see a few patients, Anneliese told me that the first time she went there the doctor sat with her for two hours and they only schedule three patients a day for this very reason. Her daughter underwent her first brain surgery in October of last year and just last week they went in and took out the bad part of the brain. Anneliese was told that her daugter was not a surgical candidate because the seizures had no beginning and no ending. I am amazed after hearing this. We have been told the same thing. These doctors care about these children and want to see them get better. This is not one of those "take a number and have a seat" kind of places. Praise God!

   "I will go before you and make the crooked places straight." Isaiah 45:2 This is just what we have been praying for, that God would send us to the right doctor and here we are. We are about to start down this path, I know for a good purpose. Because when God orchestrates things, only beautiful things come.

  I am attaching two links, the first one is the link to Anneliese and her daughter's story, the second link is the program that we hope to be getting Georgia into.

http://www.caringbridge.org/visit/christinaclark1

http://www.floridahospitalforchildren.com/medical-team/directors/dr-ki-lee

"God is faithful, who will not allow you to be tempted beyond what you are able, but with the temptation will also make the way of escape, that you may be able to bear it." 1 Corinthians 10:13

And finally, one of my favorite verses, "My brethren, count it all joy when you fall into various trials, knowing that the testing of your faith produces patience." James 1:2-3

1 comment:

  1. Wonderful news! You and Georgia are in my prayers!

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